READ THIS FIRST, FIBROFRIEND!

I received my diagnosis in 2006.

Pretty chipper for a chick w/ chronic pain, huh?

I was one of those kids who had “growing pains”…by growing pains we mean my mother slathered me with BenGay two, three times a week sometimes. You know how it is…at seven years old, you’re a little old lady! Whee! Thank God for wintergreen gum, right? As a teenager, that could always be your excuse. “Nah, dude, I’m chewing gum. I’m not slathered in old lady gel.”

I’m assuming you’ve already got your diagnosis, and here’s why: DO NOT DIAGNOSE YOURSELF WITH FIBROMYALGIA. You may have gone on Web.MD or MayoClinic.Com and decided that, yep, this misery & agony that’s been driving you and everyone you know nuts is, in fact, fibromyalgia, but please, go see a doctor. If your current doctor dismisses your weakness, pain, and malaise as nonsense, see another doctor. DO THIS NOW. Fibromyalgia mimics a number of very serious neurological diseases that can be permanently damaging or life threatening. DO NOT SCREW AROUND. I myself was diagosed with super awful bad fibromyalgia, and it turned out I also had celiac disease that was making it worse. It also could have lead to colon cancer, which is way less sexy than fibromyalgia. SO GO TO YOUR DOCTOR. Get the stupid blood tests. Have the MRIs. Go through the rigamarole.

Having said that, if you go to your doc and find out you have another chronic pain issue, you may still get some tips and tricks from this site. But for the sweet love of Baby Jesus, do NOT DIAGNOSE YOURSELF WITH ANYTHING. See a doctor, go to all the specialists they send you to, get pricked, poked, prodded, and scanned. Do it, or you just ain’t gonna get better. Ferrealz.

Once you know what’s going on, come back, check on my whinging, and see how I handle it. YOU CAN TOTALLY HAVE AN AMAZING, FULFILLING LIFE WITH FIBRO. You totally can! It just takes some time, which means it takes patience. Mostly with yourself…and sometimes with other people. You’ll see. God never gives us more than we can handle. You can totally handle this, even though some days you might be like “I WILL STAB ALL PAIN EVERYWHERE IN THE WORLD if only I could get out of bed.”

Oh, you’ll get out of bed. Ferrealz. We’ll help each other. We ain’t gonna let this stupid neuromuscular condition kick our asses…much.

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7 responses

5 08 2012
anneliese66

Omg! I suffered from horrific growing pains as a child. I remember my mother trying to massage my pain away! I was diagnosed with Fibromyalgia last year.

5 08 2012
kelliejane

How are you doing post dx?

24 12 2012
Purple Law Lady

Hi!

I am starting a directory of Bloggers who educate, support, enlighten, inform, inspire and motivate people about and with Fibromyalgia.

I would really like to include you and your blog.

Please have a look at the information for Bloggers on my site: http://fibromodem.wordpress.com/fck-directory/for-bloggers/; and, if you would like to be included, please follow the directions and then email me at fibromodem@hotmail.com.

I hope you choose to be part of this new project.

Regards,
Fibromodem

20 02 2013
Kevin Wm. Cox

I’ve been a follower of yours on Twitter for a couple of years now, but wasn’t aware of this site. I was diagnosed with “fibrositis” back in 1988. In those days they didn’t know what else to call it. Eventually though they narrowed it down to fibromyalgia. I’ve only had one major flare-up. On the tenth anniversary of the injury that brought this on. An eight month flare-up. Sheesh! Wouldn’t wish that upon my worst enemy.

As an aside, I just received your “Princess of Swords” email, and the link to here seems to be such in Google Chrome: http://http/fibroinyourface.wordpress.com/

20 02 2013
kelliejane

I’ve fixed it now, Kevin, thanks! Feel free to comment on any posts w/ your own tips, ideas, & experiences! I find men often feel underserved in the fibromyalgia community.

30 11 2013
FiboFacialGal

I just found your site, and have very much been enjoying your wit.

Thanks for sharing, and for not sugar-coating your experience. Looking forward to many more stories…

30 11 2013
kelliejane

Thank you!

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